Our advice

"If you have any concerns please contact us, even if you think the query is insignificant, that is what we are here for."

Dr. Sarah Mangles, Consultant Haematologist

Parents and carers

As a parent or carer it is normal to have worries and concerns as your child grows up. Some of these will not be connected to the bleeding disorder but others may be.

Services and patient groups

Your local haemophilia centre provides care twenty-four hours, seven days a week. If you need advice out of hours see the Services and facilities page for your local haemophilia centre arrangements.

Haemophilia centres are able to provide a wide range of services to support you and your child, and they can point you in the right direction when you require services outside of their department. These include:
  • Consultants
  • Specialist nurses
  • Paediatricians
  • Physiotherapists
  • Play therapists
  • Specialist healthcare in other areas
  • Social workers
  • Information on local patient and parent groups
  • Information on the ‘buddy’ scheme

Further information

For more information on some of the common issues for parents and carers please see the My bleeding disorder sections. Topics covered include school, sport and looking after a young child, as well as the Teenager section for slightly older children but also helpful for parents and carers too!

Resources

There are many online resources available for you to learn more about bleeding disorders and how to manage them. You can take a look at the ones we recommend, which we have listed below.

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