National Haemophilia Database patient information update

The National Haemophilia Database (NHD) has released patient information leaflets regarding your data and how it is stored on the database. In addition to this the NHD have also released a patient leaflet for Haemtrack, a web-based system where patients can record their home treatment usage.

The NHD is a register of UK patients with all kinds of bleeding disorders, which was established in 1969.  The database is managed by the UK Haemophilia Centre Doctors’ Organisation (UKHCDO) - the doctors who treat bleeding disorders in the UK. 

The leaflets have been reviewed and edited by patients, the Haemophilia Society and the Data Management Working Party, and was also discussed with the Information  Commissioner. There is one version for patients and their relatives (orange/brown) and another for parents and their children (blue/grey).

To view the patient information leaflet please click here.

To view the patient information leaflet for children please click here.

To view the Haemtrack information leaflet please click here.

If you have any questions or queries regarding these leaflets and information please do not hesitate to get in touch.